Thursday, October 30, 2014

Almost a Year Later.........

Whew, I don't think anyone really blogs anymore. I've certainly been terrible about it. It's been almost a year since my last post. So many things have changed. Again. Funny how that happens. Time moves on. Life goes on. Nothing stays the same. I've watched as so many people have had their worlds shatter and life turned upside down for them. It seems this last year hasn't been so spectacular for a lot of people.

First. our big change. We moved. We downsized. We downsized our mortgage and our lot and house. It is wonderful. Sort of. I miss some of the space I had and I'm still struggling to figure out what to get rid of and where I'm going to put the stuff I'm keeping. My kitchen is much smaller. I am much happier. No more 30+ miles to get to an appointment. No more hours lost just in driving. We officially close on Nov. 4 on the sale of our house and then close on the purchase of the new house a day or so later. We haven't lived in our old house in over a month. And. I DON'T miss it. I don't. There are aspects that occasionally I miss, but, it was just a house and land. There is still work to be done to the new house and it will happen in time. No rush that is for sure. We are just enjoying a simpler way of life now.

My oldest baby girl had her baby girl on 01/29/14. Sophia Grace was born a very healthy, beautiful baby with a head full of dark hair. She is a beautiful little girl and very happy. At 2 months of age things were really bad between mommy and daddy. He hasn't been around since and their divorce will be final by the end of the year. Little D's daddy has been around and she absolutely adores her big brother(Little D) and his daddy, who really, has taken the role of her daddy. He adores her just as much as she does him. We will see where all this leads.

Goosey Lucy will be seeing an endocrinologist next month(it was the soonest they could get her in). She is showing lots of signs of puberty already and her growth is still out of this world. Her pedi wants them to do their more thorough testing to see if there is something causing it. She is 4' 8" and weighs 125lbs. She is still absolutely beautiful. Her thyroid function was normal and we are waiting on more lab results. The pedi mentioned something about the endo being able to test cortisol levels and other stuff.

Turkey Lurkey and Chicken Little are still doing ST and OT and now Chicken Little is in PT as well. It seems we wasted an entire year at the old therapy clinic. We switched clinics about 2 months ago because I didn't feel any progress was being made. They both will having neuropsych testing done. We go in the beginning of next month for the testing to get the referral. It's all so frustrating and I was having a big 'ol pitty party earlier. Silly isn't it?

Daddy had his surgery last November. He finally went back to work in March and 1 week later was out again because he, again, tore his achille's tendon. He finally went back to work about a month later. Then he ended up with a sore on his big toe in May. It was doing well, for a while. The doctor finally told him he wanted to do a partial amputation of the toe because it wasn't healing. With all the work he had missed he said no. The end of September he got sick. Ran a fever for about a week. Finally on a Monday morning he asked me to look at his toe. I told him he was going to see his doctor or to the ER. Those were his only options. It suddenly look horrible. He was able to get in to see the doctor. The doctor sent him immediately to the hospital and amputated that toe, partially, that night. He had developed gangrene. Thank goodness he listened to me because the doctor said if he had waited even one more day he would have lost his entire foot. Scary stuff. He just went back to work last week.

I'm still here. Plugging along. Trying to stop relying on myself so much and put my trust where it should be, in the Lord.

                                                 Big brother and his baby sister
                                                      Aunt Goosey holding baby Sophia




Saturday, November 16, 2013

7 Years And So Much To Be Thankful For

It's hard to believe it's been 7 years. My tiny( OK they really were huge for their age) little babies that insisted on entering this world 2 months early are 7. Where has the time gone? I can't believe how much has changed. Time truly does march on. We had a nice little celebration. Family and a few friends. The trio had a blast just playing with their friends. A few presents and they are happy kids.

Goosey Lucy is turning into quite the little lady. She is beautiful inside and out. She loves the colors pink and purple. She is girl through and through. Her favorite song at the moment is Overcomer by Mandisa. She will do just about anything to please people. Such a beautiful spirit she has. There was an incident at church a couple of weeks ago and it really shook her up. Our drummer went into cardiac arrest in the middle of the choir song. She cried and cried and told me she was going to try to be happy for him if he didn't make it because he would be with Jesus. He did make it and daddy took her to the hospital to visit with him. He had quadruple bypass the next day and is doing well. She has said for months that she wants to be a missionary when she grows up, now, she says she wants to be a missionary doctor. She has no favorite food, because, like her mama, she just loves food period!

Turkey Lurkey is still the sweet sweet boy he has always been. Not quite as serious as he once was. A gentle soul. His favorite colors are green and orange. He's too busy being a boy to notice music or much else for that matter. He will forever be a daddy's boy, of that I'm convinced. He is a good helper and tries to keep the peace. He was the first one I got to hold and he was 3 days old. I will never forget those 5 minutes.

Chicken Little is a rebellious little snot. He is a good boy but definitely tests the boundaries, on a daily basis it seems. His favorite colors are red and blue. Again, to busy being a boy to notice music or much else. Like I said, he likes to push his luck, with everything, but especially mommy's patience. He works hard in therapy and I guess he is making some progress. We are dealing with a few sensory issues too. He will always be my sweet baby boy. He is certainly a mama's boy and I'm not complaining one bit! I love my cuddle time and I get most of it with him.

It drives me crazy going to therapy twice a week, but, since we started I have made a new friend. My fellow therapy mom. Her son is awesome and as cute as can be. She is pretty awesome too. We have only ever hung out at therapy, until today. Today they came to the trio's bday party. It was so nice to have them here with us. I can't wait to spend more time, away from therapy, with them.

There are so many things to be thankful for, but, on this day, every year, I am thankful for my life. I didn't think about it much at the time 7 years ago, or even 6 years ago, but about 3-4 years ago, it hit me. It was like a brick wall jumped right into my path. It hit me, that less than an hour after having my beautiful babies, I was fighting for my life. Well, the doctors were doing most of the fighting. I was just kind of laying there thinking, "wow, I don't think I'm ever going to see my babies". So, I'm thankful for my life. I'm thankful that I have been able to be there for my babies and I pray that I will be here for ALL of my babies for a very long time.

And, finally, a couple of wedding pics and a couple of the birthday babies. Not great ones but, hey, it's something. :)









Monday, October 28, 2013

New Beginnings.......

Lots has happened since I last updated. Caitlin got married a week and half ago. She is having a little girl due 2/15/14. Her name is Sophia Grace. My dad and step mom spent almost 2 weeks with us. I was so nice to have them here. We got lots of quilting projects done. Now I have 3 quilt tops done and ready to be quilted(not sure when that will happen), I made a fall table runner and a Christmas wall hanging. Now, I am working on Goosey Lucy's quilt.

Hubby and I spent 3 days in Vegas for his CATM reunion. The reunion was fun. Hoover Dam was pretty cool. Vegas is not my kind of town. Just didn't get excited by it all. Guess I'm boring.

Markas accepted Christ 2 weeks ago. Yay!!!! He will start his New Christian Class in Decemeber. He has to wait that long because Josh is starting his in November. Yay!!!! They don't want them in the same class so they can be sure that they really know and understand and didn't do it just because Lucy did. She is finished with her class and we are meeting with another counselor and then the pastor this week.

Lucy is such a tender, sweet, loving girl. Yesterday during church, our drummer collapsed.  I was sitting alone with them so there was no way I could go help but I also knew that there were doctors and nurses very close by that got to him very quickly. Thank God the church put AED's in a couple of years ago. They started CPR and got the AED hooked up to him. It shocked him and they resumed CPR. Maybe 30 seconds later you could hear him take a breath. All the while Lucy was crying and asking me what was happening. Since I don't believe in lying to my kids, I told her that his heart had stopped beating. She told that made her very very sad but if he died then she would be happy for him because he would get to be with Jesus. He was awake and sitting up when the ambulance took him out. After church last night daddy took her to the hospital to see him. She held his hand, gave him the picture she made(the boys did too). She told him she was really glad he was OK. He underwent quadruple bypass surgery today. Surgery went well and he is doing well. Lucy has decided now that she wants to be a missionary doctor when she grows up.

Markas is still doing speech and OT. He is still giving me a hard time with handwriting stuff. Josh is doing OK and Lucy is doing great. She loves school. She loves reading.

Daddy needs to have surgery on his hand. He needs a ligament release and a tendon transfer. I'm trying really hard not to freak out about the money thing. I'm trying to trust that the Lord will provide but it's hard when my brakes started grinding today and I don't know how we are going to pay for that and daddy is still working. With a reduction in income, no matter how temporary it is, it's going to be even more difficult.

Anyway, hopefully sometime soon I will get the pictures downloaded so I can post a few on here.

Tuesday, September 10, 2013

It's Official

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Chicken Little was officially diagnosed with hearing loss yesterday. Right now it is mild. There is no way to really know if it is stable or will progress. He will have hearing tests every 6 months for a while so they can try to determine if it is stable or progressive. I know he will have an ABR sometime soon so they can try to figure out if it is sensorineural or conductive. The audiologist thinks it may be due to the scarlet fever he had this past April.

He is still going to speech and OT twice a week. He is working hard but I am struggling big time with getting him to do any handwriting at home for school work. He just complains about how tired his hand gets. I know his hand does get tired but he has to do it. The therapist said they have been working with theraputty and a little handwriting but they have been focusing more on the visual perceptual stuff. Obviously, that is really important so that he can start reading better and also be able to see "right" to write.

I admit, there are days/weeks that I dread the thought of one more appointment. One more time we have to drive 30+ miles and spend hours upon hours away from home. My house is a wreck and I'm not sure it will ever recover. I've threatened to just move. At this point it seems like it may be easier. Ok, maybe not but there are definitely times it feels like it. Oh well, they are only little once and I have to give him the best possible chance of being successful. I don't care if my children go to college or not. It isn't for everyone. The one thing I want for them is to be life long learners. I want them to have such a love of learning that they are constantly "thirsty" and seeking knowledge, of anything and everything, to quench their "thirst".

Anyway, some recent pics of Turkey Lurkey, Goosey Lucy, and Chicken Little are above in that order.

Monday, August 26, 2013

I've done a lot of thinking the last few days, weeks, months. So much has changed in the last 2 years.

If you had told me 2 years ago that I would be surviving and thriving without my mother, I would have told you there was no way. She was my rock, my champion, my hero. She meant everything to me and I didn't spend the time with her that I should have while she was healthy and able to. I was too "busy". Too busy working. Did we need the money? Yes and no. What was I working for? Money to take vacations? Yes. Money to buy things we didn't need but wanted? Yes. Obviously, I was still of the mindset(like so many others) that working my behind off outside of my home for these "luxuries" was more important than anything else.

If you had told me 2 years ago that I would be homeschooling my children and therefore not working my behind off outside of my home and also giving up any "me" time, I would have told you no way. While there was a part of me that always wanted to homeschool, I cherished my "me" time and my children drove me crazy. It was all selfishness. I wasn't focused on what was important. I mean really important. Do my children still drive me nuts? Yep. Some days more than others.

Since we have been "forced" into the current situation we are in, I have taken the time to rethink everything. I love my beautiful big house that we worked hard to get, but, if I had to make the choice to either go back to work to keep this house or sell it to stay home with my babies, the choice would be easy. We would certainly be moving. It's nice to have more room. It's nice to be surrounded by nothing but trees, but, those things aren't what's important. Being present for my children and my husband are. Playing tag with your spouse when trying to raise kids doesn't work as well as one would like to think. I completely understand that for some, there is no choice. Maybe for some it works. It just doesn't work for us.

We started school a couple of weeks ago. Some days are challenging. Some days we don't get to our school work at all. Some days are easy peasy. We were working on math the other day and we were learning to add 0. Turkey Lurkey wasn't getting it. We use blocks to "build" our numbers. We went over it and over it. I was just about to say we were done for the day when suddenly the light bulb went off. It was the coolest thing ever.

Chicken Little is doing well with therapy. We struggle the most with school but he LOVES math!!! We do math last so that he will get through the rest of it.

Goosey Lucy is just a little rock star when it comes to school work and I am thinking that I am not challenging her enough but I am also still getting a feel for exactly where she is.

My Caitlin is pregnant and due 2/15/14. She was recently told that her chances for having a baby with Down Syndrome are very high. She is scheduled for an amniocentesis next week. It was difficult news to take, especially for a 21 year old woman with a 3 year old. She will be 22 when the baby comes and little D will be almost 4. I'm so proud of her though. She is doing so well and has rededicated her life to Christ. I can't even type that without crying. I feel that no matter the outcome with this baby that He is using this to continue bringing her closer to Him. I'm just so proud of her. She has come so far and it has been a very difficult road, especially for her.


So, here I am, 4 hours after starting this post. I keep getting distracted. I come back and erase what I had written. Re-write it. The changes that have happened over the last 2 years are amazing. I still miss my mom. I still cry sometimes. Every day I am amazed that I have been able to move on because there was a time when I didn't think it would be possible. I still talk to her every day. Her urn is very present in our home. A huge picture of her hangs in the living room. My step-mom is so much like her. They got along so well. Sometimes, when I'm talking to my step-mom I can hear my mom's voice. I think I miss that the most. That and being able to hug her. She didn't do that often but when she did they were wonderful hugs. I only hope and pray that my children and grandchildren can love me as much as we all love her. My children make me want to be a better mother. My husband makes me want to be a better wife and all of them make me want to be a better woman. I only pray I don't ever let them down.


Tuesday, August 6, 2013

OT

Markas had his OT eval yesterday. When she asked me what my concerns were, I told her nothing really. I didn't think he needed OT because I thought his fine motor skills were OK. He cuts things out like a champ. He has a little trouble with buttons/snaps/zippers but he is able to do them. When she was done with all of the tests, well, things weren't quite what I expected. He has a visual perceptual processing disorder and he does need some work on his fine motor skills. He can't move his wrist and hand when writing. He moves his entire arm. I never noticed that. So, he will be starting OT twice a week. He was supposed to have another speech eval but the speech pathologist had an emergency so that has been rescheduled for next week.

We are still waiting on the ENT appointment to find out about the hearing loss, if there is in fact any loss. At this point anything is possible with this kid.

I had planned on starting school this week but with daddy still on vacation........it just didn't happen! Daddy goes back next week so hopefully we can get into the swing of things and get used to our new schedule. For now, therapy is in the afternoons so we will have plenty of time in the mornings for school.

Wednesday, July 31, 2013

Quick Trip

We took a quick trip to Kansas to visit my dad and step-mom. It was a long drive but a great trip. I spent the entire time learning to quilt and made 2 quilt tops in 4 days. It rained a lot while we were there and the temperature was wonderful. That was a welcomed break from the heat of South Texas. My dad and hubby took the trio to Exploration Place one day and they had a great time. It was a wonderful visit and the trio were so good the entire time we were there. They were even really good on the trip up. The trip home was a different story. They weren't bad, per se. They were just wild and crazy and kind of annoying. You know? Being 6 year olds.

Markas is scheduled for another speech eval and also occupational therapy eval. We are still waiting on ENT.
Lucy and Josh had their monthly check-up and we got the results for their blood work. 6 months ago Lucy's triglycerides were at 287. This time we are at 83!!!! Huge!!! She is also no longer pre-diabetic(for now anyway). Her A1C was down to right around 5. Her weight was up again but the improvement in her blood work is huge!!!!
Josh's blood work also was much improved. His trigylcerides went from 190 something to 87. Both still have bad cholesterol and while his A1C was good, his fasting glucose was 105, so they are a bit concerned about that.

This has been one heck of a journey with a them. Hopefully things will continue to improve, but, usually we take 2 steps forward and one step back.


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